News

03/2024 JA CraNE Local Stakeholder Forum in Germany

03/2024 JA CraNE Local Stakeholder Forum in Germany

The German Local Stakeholder Forum of the JA CraNE was held in Berlin on 21 February 2024, within the framework of the 36th German Cancer Congress.

The session „Tackling challenges in cancer care and improving its governance in the European Union – working towards high quality of cancer care in all Member States“, moderated by Dr. Antonius Helou (Federal Ministry of Health) and PD Dr. Simone Wesselmann (German Cancer Society), aimed to present on going European initiatives to support the fight against cancer addressing high quality of cancer care and bridging the gap between care and research.

A more detailed report can be downloaded here

02/2024 CSA CCI4EU 3rd WP2 Meeting

As part of the European Mission on Cancer funded project Comprehensive Cancer Infrastructures for Europe (CCI4EU), the third Work Package 2 meeting took place at the DKG office from 15-16 February. The Cancer Mission Board describes CCIs as national or regional infrastructures that provide resources and services to support, improve and integrate cancer care, research, training of nurses and education for cancer patients, survivors and families. During the Work Package 2 meeting, the 53 participants, representing 23 organisations from 13 countries, discussed and agreed on the concept, structure and development of a Maturity Model to map the implementation levels and further development of CCIs.

DKG is leading the Work Package 2 together with colleagues from Karolinska CCC. The two days were filled with exciting discussions and we look forward to further cooperation in this important project to improve oncological care and research structures in Europe. Further information can be found at www.cci4eu.eu

Group Picture of the CCI4EU WP2 members (© DKG)

01/2024 New audit documents

The auditing documents for 2024 including an updated Catalogue of Requirements and Data Sheet are now available for download on the website. In case of any questions please do not hesitate to contact us under info@ecc-cert.org

12/23 3rd CraNE WP6 Meeting

3rd CraNE WP6 Meeting

On 28 November the third WP6 meeting took place in the National Cancer Institute (INC) in Luxembourg. 50 participants from 37 organizations were attending including guests from the JRC and DG Sante and DG RTD. During the meeting the results of the five tasks were presented, discussed and agreed as well as the preparations for the following activities were initiated.

In particular, the first draft version of the handbook of how to set-up a quality assured CCCN received high interest from the participants. So did the final Set of Quality Indicator for Lung Cancer Care as well as the update on the development of a Lung Cancer Patient Pathway with a focus on patient-centeredness in CCCNs. In addition, we were pleased to receive a detailed update from the two pilot centres of the Lower Silesian Oncology Centre (Wroclaw, Poland) and the Lung Cancer Network (Luxembourg), which are implementing a CCCN for Lung Cancer. Last but not least the Antwerp University Hospital (UZA) presented their first preliminary results on the feasibility study to analyse guideline adherence with the help of automatic collection of guideline-based Quality Indicators on the example of Pancreatic Cancer. The Set of Quality Indicator for Pancreatic Cancer developed in the Joint Action iPAAC are the foundation of this pilot.

We are looking very much forward to continue the great collaboration within WP6. The next WP6 meeting will take on 01 July 2024 and will be hosted by National Institute of Public Health (NIH), Warsaw, Poland

11/23 The CCI4EU website is out!

The CCI4EU website is out!

The website for the CCI4EU is now online. Here you will find all relevant information about the CCI4EU, the different work packages and the next steps. CCI4EU is a European initiative aiming to help Member States and Associated Countries to rethink the cancer culture by funding a more equitable transfer of knowledge to everyone.

Link to CCI4EU Website

10/23 CSA CCI4EU 2nd WP2 Meeting

CSA CCI4EU 2nd WP2 Meeting

On 16 October the second WP2 „Definition of criteria for Comprehensive Cancer Infrastructures (CCIs) using a CCI maturity model (CCI-MM)“ meeting took place as an online meeting. 61 participants from 31 partner organisations were attending.

During the meeting the first preliminary results from the defined set of criteria’s for the Maturity Model were presented, discussed and agreed as well as the preparations for the following activities were started. Maturity Models are used as tools to assess the current situation of the subject under study (here CCIs) and improve this situation by indicating a path for maturation. After defining the final set of criterias and the number of maturity levels, they will be integrated into the CCI maturity model. This model will be developed as a CCI maturity web tool that facilitates online data collection and self-assessment. It will be elaborated as a living model.

We are looking very much forward to continue the great collaboration within WP2.

The next WP2 meeting will take on 15-16 February 2024 in Berlin.

09/23: New Annual Reports 2023

New Annual Reports 2023

“The first round of Annual Reports 2023 for Pancreatic Cancer Centres and Neuro-Oncology Cancer Centres are now available for download. The Annual Reports show the results of tumour-specific indicators documented in 2021 and were verified through audits conducted in 2022. More Annual Reports of further certified Cancer Centres will be published in the course of October. In case of any questions please do not hesitate to contact us under info@ecc-cert.org. “

07/23: Kick-off CSA CCI4EU WP2

Kick-off CSA CCI4EU WP2

On 26 June 2023 the work package 2 (WP) „Definition of Criteria for Comprehensive Cancer Infrastructures (CCIs) using a Maturity Model (MM)“ under the leadership of the DKG had its online kick-off meeting with support from colleagues from Karolinska Comprehensive Cancer Centre and Technische Universität Dresden. Over the next three years, the working group with representatives from 31 partner organisations from 14 member states will develop in collaboration with other stakeholders and partners, a joint understanding, definition and scope of CCIs along with a set of criteria to assess and improve CCIs in all member states. The defined quality criteria will be integrated into a maturity model that will serve as a framework for assessing the maturity level of the individual CCIs. This model will also make it possible to identify tailor-made measures to increase and improve the maturity level of the respective CCIs.

We are looking forward to a great collaboration within WP2 and all the other partners within the CSA CCI4EU. The next WP2 meeting will take place online on 16 October 2023.

06/23 2nd CraNE WP6 Meeting

2nd CraNE WP6 Meeting

On 5 June the second WP6 meeting took place as an online meeting. 61 participants from 37 organizations were attending including guests from the JRC and Joint Action JANE WP5 leader. During the meeting the first results of the five sub-tasks were presented, discussed and agreed as well as the preparations for the following activities were started.

Especially the results from the survey of the certified CCCNs about their experiences with certification and their feedback as to what kind of tools to support the set-up and the preparation to become a quality assured CCCN were received with high interest. So did the results from the systematic literature review and survey on patient-centeredness in CCCNs. We are looking very much forward to continue the great collaboration within WP6. The next WP6 meeting will take on 27-28 November and will be hosted by the National Cancer Institute (INC) in Luxembourg.

05/23: Kick-off-meeting of CCI4EU in Milano

Kick-off-meeting of CCI4EU in Milano

On 23 Mai 2023 the new EU project „Comprehensive Cancer Infrastructure for the European Union“ (CCI4EU) had it´s kick-off meeting in Milano.

55 partners from 27 EU Member States and 5 Associated Countries particpated in the kick-off meeting of the Comprehensive Cancer Infrastructures (CCIs). Coordinated by Organisation of European Cancer Institutes (OECI), this capacity building (CB) programme is a complex intervention that requires multiple and integrated actions delivered to the right stakeholders – policymakers, researchers, health professionals, patients, caregivers and private companies.

The project aims at

• Defining a Maturity Model based on cancer research/care performance indicators to be used to analyse the maturity of CCIs across the EU
• Mapping the maturity of CCIs according to the agreed quality indicators and clustering them according to maturity
• Designing tailored capacity building interventions, giving priority to EU countries without any CCI
• Delivering online training courses open to all EU Member States and associated countries
• Implementing targeted onsite interventions
• Scaling up and sustaining development by dynamically engaging the right stakeholders; disseminating and exploiting project outcomes.

The German Cancer Society takes the lead of Work Package 2 „Definition of criteria for Comprehensive Cancer Infrastructures (CCIs) using a CCI maturity model (CCI-MM)“. The aim of Work Package 2 is to develop, in collaboration with other stakeholders and partners, a joint understanding, definition and scope of CCIs along with a set of criteria to assess and improve CCIs in all member states. The defined quality criteria will be embedded in a maturity model which will be the contextual backdrop to assess CCI maturity and to develop tailored interventions to increase the individual CCIs maturity level.