The need-based and timely care of individuals at risk of familial cancer is becoming increasingly complex and individualized as a result of continuous scientific advances. To achieve this, those affected and players from all sectors in the healthcare system must work closely together. So far, there are hardly any digital technologies in Germany that support transsectoral care.
The digital care platform dVP_FAM aims to improve the identification, individual counselling and further care of people with familial breast and ovarian cancer. As a first step, the family history interview with practicing gynaecologist/oncologist gynaecologists or oncologists will be digitally supported via the dVP_FAM. The preparation for a specialized genetic consultation in a certified centre for familial breast and ovarian cancer (FBREK centre) is managed via the digital platform, as is the collection of the necessary documents and the scheduling of appointments. Those seeking advice will have full control over their data at all times and access to all important and individually coordinated information. This creates a transsectoral care concept – from the branch office to the specialized FBREK centres – and back!
The goals of the innovation fund project dVP_FAM are:
- the early identification of patients with a familial cancer risk,
- the simplification of the exchange of information across sector boundaries,
- increasing the efficiency of care, and
- enhancing patient empowerment and improving the quality of life of individuals at familial risk for cancer.
The impact of the dVP_FAM on the quality of care will be assessed starting in July 2023 with a cluster randomized trial, semi-structured interviews and observations in the daily life of the platform users. In case of success, the care platform will be adopted in standard care.
Zentrum Familiärer Brust- und Eierstockkrebs, Charité – Universitätsmedizin Berlin
Institut für Geschlechterforschung in der Medizin (GiM), Charité – Universitätsmedizin Berlin
Institut für Psychologie und Arbeitswissenschaft, Technische Universität Berlin
Universitätsmedizin Greifswald, Zentrum Familiärer Brust- und Eierstockkrebs
German Cancer Society (DKG)
ID Berlin GmbH
Humboldt-Universität, Juristische Fakultät, HU Law Clinic
Institut für Biometrie, Charité-Universitätsmedizin Berlin
Institut für Sozialmedizin, Epidemiologie und Gesundheitsökonomie, Charité-Universitätsmedizin Berlin
BRCA-Netzwerk e. V.
Kassenärztliche Bundesvereinigung, Dezernat Versorgungsqualität
Innovation Committee of The Federal Joint Committee (G-BA)
December 2021 – November 2025