Healthcare-related data from the DKG in OMOP data format
Standards for the content and form of the data collected are necessary in order to be able to jointly evaluate healthcare-related data across organizations and internationally. So-called „common data models“ (CDM) are created for this purpose. CDMs not only offer a uniform standard for the coding of e.g. diagnoses, therapies or symptoms (based on existing systems such as the ICD-10 classification), but also the type of relationship between individual parameters collected (e.g. cases of illness are clearly assigned to individuals and different therapies are assigned to each case of illness). One such internationally widespread data model is the „OMOP“ (Observational Medical Outcomes Partnership) model. The advantage of using a uniform data standard is the joint evaluation of different data sources without the need for central linkage (federated data evaluation).
The DKG currently has two large data sets in OMOP format: On the one hand a data set for colorectal cancer with more than 8500 patients (as of February 2024) based on the EDIUM study and on the other hand a data set for prostate cancer (PCO study) with more than 49000 patients (as of February 2024). The data are suitable for federated data analysis (see also OPTIMA or EHDEN project). The DKG datasets are listed in the EHDEN Data Partner Portal. If you are interested in a joint evaluation, please contact Dr. Nora Tabea Sibert.
Involved Institutions
German Cancer Society (DKG)
Funding
European Union
Innovative Medicines Initiative (IMI, for the transition to the OMOP standard by February 2024)
Duration
March 2023 – unlimited
Publications
see publications
Contact
Dr. med. Nora Tabea Sibert
